Clouds drifting by

https://www.bbc.co.uk/news/articles/c2e2zvlyy38o

"If they would rather die," said Scrooge, "they had better do it, and decrease the surplus population."

I really think that's the attitude some NHS officials have towards those with complex needs. Like me.

No one should have to live their life with a disability if a surefire treatment is available. There's a freedom in being able-bodied.

BBC article: Changing the lives of Senegalese people disabled by clubfoot.

( Read more... )

12. What would you do differently if you knew nobody would judge you?

Hmmm, if I knew it'd have no effect on my life at all?

I'd never go to my hospital appointments. I'd save myself the stress and aggravation of spending 4 hours (waiting for patient transport, travelling, waiting to be seen, waiting for patient transport, and travelling home again) just to spend 10 minutes seeing a specialist.

I go in case there's been a development in treatment, and in case I need those specialists to tell the benefits system that I'm still this disabled.

11 What's the most benign fairground or playground ride that has properly scared you?

Hmmm. This was 2005 when I was having falls and found it really hard to get up. I hadn't been given a diagnosis then.

It was a ride at Disneyland. It had a sliding floor, so you could stand still and be carried along to the further carriages. I didn't realise and I stepped onto the slidey bit and almost fell. That was terrifying.

Have any of you heard about Amazon Echo? It sounds amazing!

Can you imagine how useful this would be for disabled people? You can tell it to arrange for a taxi, so probably an ambulance as well. Tell it to turn on or off lights or the TV or play music...

Obviously, your lights/TV/whatever would have to be connected or able to receive a signal but talk about helpful.